i have tried to write this post a million times over in the last couple of days, but every time i start, i stop. the saatchi bill, previously called medical innovation bill has impacted me more than i could have ever imagined. this time last week i knew nothing about it, now i know a lot more about it, and it has touched a very strong chord with me. let me give you a very short overview of the meeting that i attended at the houses of parliament on monday just gone.
lord saatchi, professor andy hall, debbie binner, michael ellis, daniel greenberg & dominic nutt called a meeting at the houses of parliament to take time to talk to a group of bloggers, and speak to us in detail about the bill. to share their stories with us and our stories with them. to give us detail on the bill and answer any questions that we may have, in advance of the bill having its first reading in the house of commons on the 11th of september and of what effect of this bill could be if passed.
lord saatchi opened the meeting with a powerful statement, where i immediately knew that the next hour was going to be hugely emotional for all in the room.
“all cancer deaths are wasted lives, current law represents an impediment to finding a cure. doctors must adhere to standard procedures. the treatments/procedures followed are 30-40 years old. they are relentless, medieval, degrading and ineffective”
it has not yet been three months since i have said goodbye to the gorgeous louise, even if a little bit messy. immediately these words hurt me. immediately i knew these words were true. i wasn’t strong enough on monday to tell my story of why i was there. i have tried to tell you my story now in this post of why i was there, but i’m not ready. louise was an incredible woman. i am honoured to have been her colleague, her friend, her neighbour, her partner in crime of eating all things cake. louise didn’t get an option. louise didn’t get any innovation. louise would want to support this bill.
the bill and why we need it
the saatchi bill is designed to help doctors innovate, so that they can advance in medical science and find new and better treatments, even potentially cures for diseases and conditions including cancers. it will allow good doctors to deviate away from standard procedures and encourage them to innovate sensibly, in a contained and measured way, with the patients consent and with the protection of the law. it will also expose bad doctors who act in a reckless way and do not go through the correct procedure and acts alone.
patients will be able to demand much more than the standard treatments from their doctors. armed with this type of legislation, a patient and doctor can challenge the status quo, and present to the ‘multi-disciplinary team’ or MDT, using innovative alternatives when standard procedures are not thought to be effective and that this deviation would be a good thing to do.
current law defines negligence as a deviation from standard procedure, but as innovation is deviation, non-deviation is non-innovation. the current law is a barrier to progress. under present law, any deviation by a doctor from standard procedure is likely to result in a verdict of guilt for medical negligence. and this is why there is no cure for cancer.
so there you have it, a short overview. i do apologise that it’s short, poor show i know, i’ve added some links below so that you can read some more. i’m struggling right now with the what could have been for louise. but this bill can change the what could be for many many others. please can we ask for your support in getting this bill passed so that we can all look forward to an innovative future.
you can down load the bill here
you can email your local MP to encourage them to support the bill too, it only takes one to shout object and everything grinds to a halt.
posts by bloggers in attendance
read more about the bill in press coverage links below: